posted April 24, 2013
In 2010, Sara was living her dream as a musician in Hollywood with a track record of success in the music business and had just learned that she and her husband were expecting twins. At her 36 week ultrasound the perinatologist noticed that one of the twins, her baby boy, had enlarged kidneys. An emergency c-section was ordered and a diagnosis of a disease they had never heard of was made. ARPKD.
When the twins, Ruby and Myles, were born, Ruby rested peacefully next to Sara, and over 20 doctors and nurses fought to help little Myles pull through. Several hours later Sara and Alex were given the news they feared most and they went to say goodbye to their son. Sara then began recording her album in 2012. On it, Sara and Billy sing Tears in Heaven, a perfect cover song for the album. “Making this record seemed like a cathartic and healthy thing to do, get me singing again and help me heal. Hopefully, it can help other parents as well. Knowing I am singing from the same heart as theirs…
Myles took his last breath at 4a.m. after living for only a few hours. He was diagnosed with ARPKD just the day before. After what seemed like a textbook pregnancy, my husband and I were at a 36 week ultrasound in shock at the size of our son’s kidneys. We were told he would probably not live. We were angry and had never heard of this disease before. Devastated and confused we were sent home to pack a hospital bag and pray.
I could hardly hum a tune after our son’s passing. I needed to heal physically and emotionally. I partnered with the PKD foundation to make a lullaby record for parents and children. Something they could give to others like myself, a family living with the disease, or for anyone who is mourning any kind of loss. There is a saying that music heals the heart and soothes the soul. I hope you find strength through this music like I did.